BIG battles. BRAVE littles.
Hi, I am Bella Brave! I am little but I am so fierce! I was born with 3 rare diseases and have BRAVED over 800 days in hospital. I am currently listed for a bowel transplant through SickKids while I seek care in Saskatchewan and Alberta.
Braeden is as unique as they come! He has multiple diagnoses and more than 20 clinics at the Alberta Children's Hospital! B's 'main' (genetic) diagnosis is called Hajdu-Cheney Syndrome and he is only 1 of 100 cases known WORLDwide! Braeden is full of sillies, laughter and love. He effortlessly charms all who meet him.
I was an active healthy 17 month old when a common cold caused my immune response to be misdirected and within a few hours I was paralysed from the neck down (called transverse myelitis). I dream of one day playing and dancing like all my friends without my wheelchair or walker. My rehab/medical team is in Montreal.
I am 4 years old and I love biking, hiking, swimming, movie nights, dresses and superheros. I have a very rare condition called congenital scoliosis, rib and vertebrae anomalies, severe asthma, adrenal insufficiency, and ketotic hypoglycemia. My team is the Alberta and Montreal Children's and the Shriners Hospitals.
I am 3 years old and I love food, cars, Blippi, and my siblings. While I have many medical conditions, including hypotonia, dystonia, epilepsy, failure to thrive, ketotic hypoglycemia and central hypothyroidism, I remain undiagnosed. I have an amazing team at the Alberta Children's Hospital.
I wear my BLC cape to show my true superpowers, who else can grow three lungs? I have a sly toothy grin followed with a giggle that always warrants a returning smile from everyone. I never sit still, I'm on the move from sun up to sun down! The team that saved my life is at the Alberta Children's.
I am a 19 month old open heart surgery superhero!! In addition to my congenital heart defects (ASD and 2 VSD's) I battle failure to thrive and a hemivertebrae. I have to go to the hospital very often but I am so BRAVE! I love to laugh, play, and explore everything with my older brother. My team is the BC Children's.
I was diagnosed with Stage 3 Hepatoblastoma (liver cancer) at 14 months old. One in a million kids are diagnosed with this rare cancer! I have had 14 surgeries in my life and spent close to 100 days in-patient at the Alberta Children's Hospital. I am now in remission and I love all things horses, dancing and music!
I am 10 and I have a craniopharyingioma (brain tumour). I was diagnosed when I was 7 and had surgery and proton radiation. Currently, my craniopharyingioma is under control but I am panhypopituitary as a result of tumour damage and radiation. My teams are at the Alberta Children's, Stollery and St. Jude's Hospitals.
Rylie was born on June 11, 2018 and passed away on October 2, 2018 before having the chance to come home. Her team often called her a medical mystery, gave her the nickname “Rylie the Rager”. We will remember her beautiful smile that lit up the room, her eyes full of wisdom, and her BRAVERY.
I am 1 year old and was born with Congenital Scoliosis. I am a sassy and energetic guy who loves to climb, dance, run and wrestle with my big sister. Our team is at the Alberta Children’s Hospital and the Shriners Hospital for Children.
I am 7 years old and I love horseback riding, animals, movies and food! Since I was 4, I've been battling a rare condition called PANS that creates a misdirected immune response resulting in inflammation and antibodies that attack my brain. My amazing team is at the Alberta Children's Hospital.